DNA testing company 23andMe filed for bankruptcy protection on March 16, leading to concerns regarding the potential future use and management of the genetic data from its 15 million customers. The company has stated that data privacy will be a crucial factor in any upcoming transactions. Nevertheless, security experts and lawmakers are advising customers to take measures to safeguard their data, as a change in ownership could alter how this data is handled.
For individuals who have shared their DNA with 23andMe, it is possible to take steps to protect personal data. While not all data can be deleted, certain actions can be controlled. Users have reported slow website performance, likely due to increased traffic from individuals attempting to delete their data.
To remove data from 23andMe, users need to log into their accounts and go to the Settings section. Within the “23andMe Data” section, users can select “View” and then proceed to “Delete Data,” where they can choose the “Permanently Delete Data” option. A confirmation link for the deletion request will be sent via email. Users have the option to download a backup of their data before deletion.
It is important to note that according to 23andMe’s privacy policy, the company and affiliated labs may retain certain genetic information, such as birth date and sex, as required by law. Furthermore, 23andMe retains some account-related information and deletion request details for legal, contractual, audit, and compliance reasons for a limited time.
Regarding the destruction of test samples and revoking data usage permission for research, individuals who previously allowed 23andMe to store their saliva samples and DNA can change this preference. Users can withdraw consent through the “Preferences” and “Research and Product Consents” sections in their account settings. However, once consent is reversed, the information itself cannot be deleted.
It is advised for customers who have requested their data deletion to also reach out to family members, as genetic data implications extend to relatives. Additionally, contacting friends to ensure they are taking steps to protect their own data is recommended.
